Nasty MSA

Just lost a friend recently to ALS, so I get what this kind of disease and the facts about these terrible conditions.

Who I am

It’s really been a rough few days. I have gotten into it with Hospice on more than one occasion. I have told them I need more help from them, as far as their nursing part goes.

I am still struggling with being so tired but my blood pressure is down quite a bit. The medication I now take makes me sleepy and I feel guilt by falling asleep when my caregiver is here along with my girlfriend.

Everyone inside this house is treating me like royalty. It doesn’t feel familiar. It feels strange, but I don’t fight it anymore. I accept with blushed cheeks and will never forget what others are doing for me.

Al’s illness is now in his bloodstream. It has taken over every part of his body and now has entered the blood.  It has nowhere to go so it is seeping out of his eyes and…

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